Source: AUBURN UNIVERSITY submitted to NRP
HEALTHY FAMILIES HEALTHY COMMUNITIES: CARING FOR CAREGIVERS
Sponsoring Institution
National Institute of Food and Agriculture
Project Status
COMPLETE
Funding Source
Reporting Frequency
Annual
Accession No.
0211524
Grant No.
(N/A)
Cumulative Award Amt.
(N/A)
Proposal No.
(N/A)
Multistate No.
(N/A)
Project Start Date
Jan 1, 2007
Project End Date
Sep 30, 2009
Grant Year
(N/A)
Program Code
[(N/A)]- (N/A)
Recipient Organization
AUBURN UNIVERSITY
108 M. WHITE SMITH HALL
AUBURN,AL 36849
Performing Department
SCHOOL OF HUMAN SCIENCES
Non Technical Summary
Caregiving of elders and those with chronic illnesses is a growing problem in the state requiring complex knowledge adn skills with limited resources. The purpose of this project is to develop quality caregiving educational programs for our vulnerable Alabama caregiving population. The programs will provide interdisciplinary education and support via a sustainable delivery model designed to utilize existing community resources as well as web-based communication technology.
Animal Health Component
100%
Research Effort Categories
Basic
(N/A)
Applied
100%
Developmental
(N/A)
Classification

Knowledge Area (KA)Subject of Investigation (SOI)Field of Science (FOS)Percent
7246020302030%
8026020302040%
8056020302030%
Goals / Objectives
1. Decrease the burden associated with caregiving in Alabama caregivers by increasing skills and knowledge 2. Increase awareness of issues related to caregiving and respite. 3. Create caregiver website with just-in-time information including caregiver education, resources, and support. 4. Develop a caregiving curriculum including a series of practical research based educational materials. 5. Organize a series of caregiver workshops designed to get caregiver education to all counties in Alabama in a 3 year period. 6. Organize a Multi State train the trainer workshop for Extension professionals on using the caregiving curriculum. 7. Organize Caregiving and Respite Conference for professional development and to increase societal awareness
Project Methods
Caregiver training courses will be held in 9 regions covering 67 counties across the state. A team of Regional Extension Agents and County Extension Coordinators will plan and implement two 3 day, 4 hour training sessions per year for three years resulting in 54 sessions over the project life cycle. The planning team will decide the locations of the trainings. Over the three year period each region will have conduct 6 trainings sessions in 6 different counties. Each region will target at least 20 participants a year (10 per training session). To ensure consistent implementation, a caregiving curriculum will be developed to guide the implementation and evaluation. A team of Extension professionals, Auburn University School of Nursing faculty and other allied health practitioners will form the core team needed to complete the curriculum. The curriculum will cover the following aspects of caregiving: Nutrition, Food Safety, Body Mechanics, Lifting and Transferring Individuals, Stress and Time Management, Personal Care, Human Development, Caregiving during Disaster, Abuse and Neglect, Communication, Healthy Homes, Home Modification/Adaptation, and Business Aspects. Evaluation instruments will also be included. Regional Extension Agents and County Extension Coordinators will identify experts within the state to teach the lessons. The core team will also serve as teachers through face to face sessions and through the use of technology. To gather impact, pre and post test will be given to participants. Follow up surveys will be conducted at 3-6-and 12 month intervals. To encourage sustained participationincentives wil be given for completing all sessions. Additionally, a Website will be used for easy access and retrieval of information from links to other websites that deal with caregiver issues. Support can also be implemented through the system with its capability for email, discussion boards and online live chat sessions. Caregivers will be sent or directed to specific educational helps within the website. Bulletin board questions and discussions will be encouraged within the program and responded to by the relevant interdisciplinary team member. Emailed questions will also be answered as needed for more private issues. Team members will provide online educational programs and question and answer sessions on a scheduled basis at the Extension site. Questionnaires can also be implemented through this site. A repeated measures evaluative design including qualitative methods will be used to evaluate program outcomes. Evaluation of the project will be conducted at the time of the initial training and at 3 months and then at 6 month intervals for caregiving knowledge and skill development as well as reaction to caregiving and perceptions of health and burden. Needs expressed from this population for specific information and support will also be tabulated within the WebCT system technology. Data analyses will include descriptive statistics on all variables over the time period. Repeated measures analysis will be used to assess changes in needs and outcomes reported from participants over the duration of the project.

Progress 01/01/07 to 09/30/09

Outputs
OUTPUTS: Final project objectives have been met. Project outputs included: 1)12 caregiver workshops in 7 regions of the state; 2)Data entry and analysis for year two of the program; 3) 2 additional grants being submitted to further the program (neither funded); and 4) An additional state extension system requesting to use our program and materials. PARTICIPANTS: Individuals: Kathy Jo Ellison - PI on project from the School of Nursing This years activities include continuing the lead on the evaluation plan for the project, maintaining IRB approval, and helping in the development of the workshop and extension agent training with the model program and powerpint development. I personally taught in five workshops across the state in 2008. Jatunn Gibson - coPI Gerontology specialist for Extension - She also participated in workshop development and monitors the extension agent delivery of the workshops. Claire Zizza - Nutrition member of the evaluation team. She assisted the evaluation, data organization and presentation of results. Partners: There have been numerous partners in workshop implementation including local Area Agencies on Aging, Junior colleges, Schools of Nursing, churches and civic organizations and libraries. Workshops have been held in all of these locations (facillity provisions) as well as extension offices and multiple organizations have support with assistance in lunch and snacks for participants. Many presentations have been delivered by Kathy Boswell from Blue Cross Blue Shield as well as those from Hosptial agencies, home health care agencies, nursing instructors, and lawyers and legal consultants. Nutrition and nursing graduate students have been involved in data management activities. TARGET AUDIENCES: This project has been aimed at reaching the underserved group of caregivers. Family and informal (non-paid) caregivers have attended the workshops as well as a variety of paid caregivers, including agency personnel, nurses and other professional care providers. PROJECT MODIFICATIONS: Nothing significant to report during this reporting period.

Impacts
During the third year of the project, over 500 persons attended 12 workshops held in 7 different regions of the state. There were over 230 family and informal caregivers who participated with 148 of them enrolling in the formal evaluation (research) portion of the project. Analysis of year one/two data revealed significant increases in caregivng knowledge and skill among participants following the program that were sustained 3 and 6 months post program. Although participants did not report a change in overall reactions to caregiving, quality of life measures were significantly increased. These increases were sustained across time except for the caregiver physical health measures which declined at 6 months. Three presentations have been made of year one results - nationally at the American Public Health Association in November and regionally at the Southern Nursing Research Sociaty meeting in February, and the local ASNA meeting. Another presentation is planned for a national evidence-based nursing conference in Arizona in June. Final data entry is in progress and two publications are planned.

Publications

  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2009). Caring for caregivers: Evaluation of a state-wide program for caregiver education.(poster). Alabama State Nursing Association, Montgomery AL.
  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2010). Translating Caregiver Evidence into Action: Outcomes for a State Level Caregiver Education Program. 11th Annual National/Inernational Evidence-Based Practice Conference. Phoenix, AZ.
  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2008). Promotion of healthy families and healthy communities with a caring for caregivers program.(abstract) APHA Annual Meeting, San Diego, CA.
  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2009). Caring for caregivers: Evaluation of a state-wide program for caregiver education.(abstract. Southern Nursing Research Society, Baltimore, MD.


Progress 01/01/08 to 12/31/08

Outputs
OUTPUTS: Project objectives have been met. Project outputs included: 1)An updated 2 day project implementation training for extension staff including county extension coordinators and regional extension agents which included a model program with video and powerpoint slides to use in remote areas of the state; 2)15 caregiver workshops in 7 regions of the state; and 3)Data entry and analysis for year one of the program. PARTICIPANTS: Individuals: Kathy Jo Ellison - PI on project from the School of Nursing This years activities include continuing the lead on the evaluation plan for the project, maintaining IRB approval, and helping in the development of the workshop and extension agent training with the model program and powerpint development. I personally taught in five workshops across the state in 2008. Jatunn Gibson - coPI Gerontology specialist for Extension - She also participated in workshop development and monitors the extension agent delivery of the workshops. Emily Myers - Social Work member of the evaluation team. She assisted the evaluation plan and presentation of results. Claire Zizza - Nutrition member of the evaluation team. She assisted the evaluation, data organization and presentation of results. Partners: There have been numerous partners in workshop implementation including local Area Agencies on Aging, Junior colleges, Schools of Nursing, churches and civic organizations and libraries. Workshops have been held in all of these locations (facillity provisions) as well as extension offices and multiple organizations have support with assistance in lunch and snacks for participants. Many presentations have been delivered by Kathy Boswell from Blue Cross Blue Shield as well as those from Hosptial agencies, home health care agencies, nursing instructors, and lawyers and legal consultants. Nursing students and social work students have participated in workshop implementation. A nutrition and nursing graduate student have been involved in data management activities. TARGET AUDIENCES: This project has been aimed at reaching the underserved group of caregivers. Family and informal (non-paid) caregivers have attended the workshops as well as a variety of paid caregivers, including agency personnel, nurses and other professional care providers. PROJECT MODIFICATIONS: The website was not utilized this year as a source of continued education. Fewer than 6 caregivers had accessed the site for information; most just continued to contact their extension agents for further information. Additional educational programs adn support groups(beyond the workshop) were provided in 5 sites with more planned in year 3. Ideas for a different use of the Internet connecting with Communities of Practice Extension website will also be used.

Impacts
During the second year of the project, 556 persons attended 15 workshops held in 7 different regions of the state. There were over 300 family and informal caregivers who participated with 122 of them enrolling in the formal evaluation (research) portion of the project. Analysis of year one data revealed significant increases in caregivng knowledge and skill among participants following the program that were sustained 3 and 6 months post program. Although participants did not report a change in overall reactions to caregiving, quality of life measures were significantly increased. These increases were sustained across time except for the caregiver physical health measures which declined at 6 months. In addition 2 presentations were made of year one results - nationally at the American Public Health Association in November and regionally at the Southern Nursing Research Sociaty meeting in February.

Publications

  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2008). Promotion of healthy families and healthy communities with a caring for caregivers program.(abstract) APHA Annual Meeting, San Diego, CA.
  • Ellison, K., Gibson, J., Myers, E. & Zizza, C. (2009). Caring for caregivers: Evaluation of a state-wide program for caregiver education.(abstract. Southern Nursing Research Society, Baltimore, MD.


Progress 01/01/07 to 12/31/07

Outputs
OUTPUTS: Project objectives have been met with project outputs including: 1)Completed development of the evaluation pLan and obtained IRB approval of the project; 2)Development of the participant manuals; 3)Initial development of project website; 4)Held a project implementation training for 55 extension staff including county extension coordinators and regional extension agents; 5)Held 22 caregiver workshops in 7 regions of the state, and 6)Planned and conducted the National Respite Conference October 3-5, 2007 in Huntsville, AL PARTICIPANTS: Individuals: Kathy Jo Ellison - PI on project from the School of Nursing I led the effort to develop the evaluation plan for the project, obtain IRB approval, and develop the website for the project. I also participated in workshop planning and extension agent training, and participant manual development and workshop implementation. I developed two sections of the manual and training, personal care and health monitoring, and personally taught those sections in three workshops. Jennifer Wells - Co-PI until September 30, 2007 REA - Led development of manual, workshop materials, and extension agent training. Also directed the development of the national respite conference. Jatunn Gibson - coPI from October 1 until present Gerontology specialist for Extension - she took Jennifer Wells place as the Extension PI on the project. She has been instrumental in completion of the manual and workshop planning. Emily Myers - Social Work member of the evaluation team. She assisted in development of the evaluation plan. Claire Zizza - Nutrition member of the evaluation team. She assisted in development and implementation of the evaluation plan and development of the nutrition for seniors piece of the workshop. Partners: There have been numerous partners in workshop implementation including local Area Agencies on Aging, Junior colleges, churches and civic organizations and libraries. Workshops have been held in all of these locations (facillity provisions) as well as extension offices and multiple organizations have support with assistance in lunch and snacks for participants. Training: Nursing students and social work students have participated in workshop implementation. A nutrition and nursing graduate student have been involved in data management activities. TARGET AUDIENCES: This project has been aimed at reaching the underserved group of caregivers. Family and informal (non-paid) caregivers have attended the workshops as well as a variety of paid caregivers, including agency personnel, nurses and other professional care providers.

Impacts
During the first year of the project with only 7 months of implementation, over 600 persons have attended 22 workshops held in 7 different regions of the state. There have been almost 250 family and informal caregivers who have participated with 69 of them agreeing to join the evaluation (research) portion of the project. Initial data reveal a very favorable response to the workshops with positive increases in knowledge and skills.

Publications

  • No publications reported this period